Wednesday, January 2, 2013
Last week Lillian (our 3 year old daughter) was pretending to be a doctor and fix Steven's arm. She is a wonderful little girl and she loves her brother with all of her heart. She understands things that most others her age wouldn't. I wish it was truly that simple. I wish we could just take him to the doctor and they would "fix" it. Broken bones can be fixed, but Brachial Plexus Injuries are never actually "fixed" just treated. This is a hard concept for even adults to grasp. The truth is, you can't fully understand something until you go through it and you research and research and research some more... Steven is climbing everything! He likes to crawl through the tunnel we bought him but he's still not quite strong enough to "wheel barrel walk." We keep trying, and know that someday he will. He can now reach the sink to put a cup or bowl in there, it's hard work for Righty, but he can do it! Both kids have been having a ball playing with all their new toys they got for Christmas. Steven got a ride on tractor and loves to push Lilly around the house on it, and it's great for working those muscles too. He had OT yesterday and enjoyed putting weighted balls in the basketball goal they have there, we are now looking to get him one for home too. I know both kids will enjoy it and every bit of "therapy" we can sneak in without him noticing is well worth it.
Monday, October 15, 2012
Steven is now 16 months old and doing great! He loves trucks/tractors/cars and anything else that says "VRROOOOM!" He tends to use his injured arm (Right) first and then if he can't get it to do what he wants he will switch to his Left. I'm interested to find out if he will choose to be Right handed or Left handed. It doesn't matter either way, of course, but we are curious. He still has a slight elbow contracture. It isn't getting any worse but it's also not getting better. He started Aquatic therapy a few weeks ago. The first 4 sessions he cried the entire 30 minutes, but this last time he actually started to enjoy it!! I think it's separation anxiety from Mommy more than anything else. I have noticed a difference since his 2nd session, he seems less stiff and more able to reach high without overcompensating with his body. This week is Brachial Plexus Injury awareness week. We made T-Shirts to raise awareness and we are going to the walk to raise money for the BPI Center at Cincinnati Children's hospital this weekend. I have shared this blog with the local news and also pregnancy websites to hopefully spread the word. I pray that our efforts will spare another child from this injury.
Tuesday, August 14, 2012
Tuesday, June 26, 2012
Steven is one and Lillian is three! Where has the time gone? Steven is doing new things constantly now. He still has limited range of motion, especially with lifting his arm above his head and external rotation. His Occupational Therapist did some tests with him today and he is doing everything age appropriate and beyond! We are so proud of him! He is standing up alone and walking as long as he is pushing something. He is getting ready to start Aquatic Therapy in a few weeks, we are excited to see how he enjoys it. With Steven becoming "Mr. Independent" therapy is becoming more difficult. :( I hope he has fun with doing therapy in a pool, he LOVES swimming! I love it now that Lillian and Steven are playing together more, they are becoming buddies! She likes to help him do things and doesn't like it when Mommy makes him cry during therapy and stretching.
Friday, May 25, 2012
|Steven is pulling up on everything!|
|REACH! Working really hard to reach this high :)|
Wednesday, April 25, 2012
Steven crawled for the first time April 18th 2012! We are so proud of our little guy! He has been "army crawling" for a while now but I never expected him to just take off crawling on his hands and knees when he did! Now he is attempting to pull up on the play table, couch, chairs, and anything else that's eye level. He is unstoppable!
Friday, March 23, 2012
Steven is now 9 months old. He is quickly getting places he wants to go with army crawling, but not yet crawling on his hands and knees. He shifts his weight on his right side without being prompted now! We went to Cincinnati Brachial Plexus center this week for his 9 month check-up. They said he is "recovering well enough that surgery is not recommended at this time"! Yay! Wonderful news! We are so proud of our little man and how far he has come. I often wonder what he must be thinking when Mommy and Daddy are constantly messing with his right arm... Someday he will understand ;)
Thursday, March 8, 2012
Steven is now 8 months old and he is starting to "army crawl" and briefly push up on his knees and elbows. We have been working on weight shifting on the right side and trying to push up into crawling position with elbows straight. He is starting to shift his weight on his right side to pick up toys with his left hand. We give him subtle reminders by "tapping" on his right arm to remind him to use it. He is getting too smart! He has realized that it is easier to use his left arm/hand. Gentle tapping on his right arm works amazingly!
Steven is now 7 months old and making wonderful progress! He is able to lift his arm up to about eye level while sitting. His grip in his right hand is getting stronger and stronger. He is able to pick up small objects and even feed himself puffs and tiny pieces of food. He LOVES bananas! I let him feed himself a chopped up banana almost everyday!
Although he often compensates by shifting his body to the left in order to lift his right arm, he still keeps his balance very well while sitting. We have to constantly watch out for torticollis, which is basically a stiff neck from lack of movement. When he was only a few months old he had mild torticollis and we had to do special exercises everyday to correct it and also to prevent him from getting a flat spot (Plagiocephaly)..
Steven is now able to reach up behind his head and touch the floor when he is laying on his back! He still isn't able to reach past his chest while sitting. He rolls around to get toys and things he wants to play with. He can now prop himself up on his forearms and lift his head all the way up. We are so happy with his progress! He is such a happy little boy and we are so proud of him and how hard he has to work everyday. He is so strong and determined to get to things he wants, one way or another!